RDK / TEKKARE

PPR accompanied the media launch of RDK (Rare Disease Knowledge), the first free connected medical device for healthcare professionals, designed to combat diagnostic error among patients suffering from rare diseases (300 million people affected around the world, +6,200 rare diseases listed and average time to diagnosis of 5 years for a patient from the first symptoms).

The challenge: raise awareness on the usefulness and value of the app and the public-private development partnership between As We Know®, Tekkare® and Orphanet-Inserm (The rare disease portal and orphan medication) to embark the community of doctors and new partners.

• +30 pieced of media coverage
• A nomination for the Gallien Award in the U.S.
• New partners that joined the movement
• Very positive and encouraging feedback from patient associations and health professionals to pursue the development of solutions
• +3,500 downloads and + 150,000 pages viewed on the site www.rdk.asweknow.com www.rdk.asweknow.com

Missions :

• Activation d’un dispositif RP impliquant Orphanet et l’association de patients Alliance Maladies Rares : maison des messages et media-training, communiqué de presse, conférence de presse en présence de tous les acteurs à proximité du Ministère de la Santé, entretiens en 1to1
• Production du calendrier éditorial et des contenus pour les pages LinkedIn des représentants des différentes organisations
• E.mailing auprès d’une cible de médecins généralistes et hospitaliers